Fatos Selita

Background. Genetic conditions and susceptibilities dier from other diseases and health-related risks. Genetic information is shared between blood relatives, and therefore a genetic nding can have implications for the wider family.

Objective. The present study investigates people’s views on issues related to disclosing genetic information to relatives. Specically, the study assesses opinions in relation to two issues: 1) whether people have a moral obligation to share their genetic data with family members; and 2) whether healthcare providers should have a legal obligation to share such data when consent is withheld.

Design. A public engagement event was held based on the real-life court case ofABC vs the UK National Health Service (NHS). Participants were provided with information in three phases: first, about the case; then, with progressively more details of the case; and finally, with other relevant information. After being given each portion of information, the participants were asked to disclose their views on the rights and responsibilities related to the sharing of this information.

Results. The results clearly demonstrate that people hold strong and polarized views regarding condentiality, and the moral and legal duties to disclose genetic information to family members. Even when withholding information could have an adverse impact on the health and life choices of relatives, participants disagreed about the legal obligations for healthcare providers to disclose a person’s genetic information to those relatives.

Conclusion. The results suggest that the issues of privacy and disclosure of genetic information are complex and divisive.

Background. Psychological tension in the family, along with stress and mental and physical illness, are linked to the reproductive health of parents, as well as to the outcomes of infertility treatments and pregnancy overall. 

Objective. To compare stress and negative affect (depression, irritability, and anxiety) in families with induced pregnancies (in-vitro fertilization, IFV) vs. natural pregnancies. The relationship between negative affect and stress in pregnant women was explored in both groups. Finally, the study investigated links between negative affect and partner relationships.

Design. The sample included 308 women and 278 men from couples with natural conception, and 131 women and 102 men from couples with an IVF pregnancy. 

Results. Relatively low levels of negative affective states and stress were found in families with both natural and induced pregnancies. Moderate correlations were found between women’s negative affect and their stress level in both groups. Significant correlations were found in both groups between negative psychological states of the spouses, as well as between negative psychological states and warmth/hostility in marital relations.

Conclusion. The results suggest that psychological states, stress levels, and links between psychological states and quality of family relations are similar in families with IVF and those with natural pregnancies. Further longitudinal research is needed to explore the direction of causal links between the psychological states of the spouses, and between their psychological states and the quality of family relations.